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JA hernie diaphragmatique

6 documents correspond to your search

1- Le top 3 des dernières publications sur la Hernie de Coupole Diaphragmatique

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5- Retour sur la 12ème Journée Internationale des Maladies Rares

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6- Livret de présentation simplifiée de la HCD à destination des parents

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7- Le « goûter-hernie » du CHU de Lille et d’ailleurs

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10- Retour sur le 3ème symposium du réseau européen ERNICA

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13- Mise en place d’une RCP nationale hernie

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FIMATHO
Rare disease health network

CHU Lille – Hôpital Jeanne de Flandre
Avenue Eugène Avinée – 59037 Lille Cedex
+33 (0)3 62 94 39 82 – fimatho@chru-lille.fr

Filière de Santé Maladies Rares

FIMATHO is a rare disease health network, leading and coordinating a network of stakeholders involved in treating rare abdominal and thoracic diseases in children and adults (rare digestive diseases, diaphragmatic hernia, chronic disorders and malformations of the oesophagus and rare diseases of the pancreas).

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  • The network
    • Introduction
    • Our actions
    • Network stakeholders
    • Our partners
    • Useful resources
    • Order form
  • Rare Diseases
    • Pancreas
    • Oesophagus
    • Abdominal wall or diaphragm malformation
    • Digestive system
  • Care pathways
    • Finding your expert centre
    • Patient organisations
    • Medical-social
    • Feeding disorders
    • Therapeutic Patient Education
    • Transition from adolescence to adulthood
    • National diagnosis and care protocols (PNDS)
    • Lodging map
    • Emergency cards and guidelines
  • Training and recommendations
    • National diagnosis and care protocols (PNDS)
    • Multidisciplinary consultation meetings (RCP)
    • Feeding disorders
    • "Expert Parent" Training
    • University diplomas/inter-university diplomas
  • Research and support for projects
    • FIMATHO call for projects
    • Help with editing or publishing scientific articles
  • News, Schedule and Newsletters
    • News and schedule
    • FIMATHO newsletters and research bulletins
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